Canavan Research Foundation Inc

15 Alpine Rd, New Fairfield, CT 06812
EIN: 061579083
Contact: Samantha B. Karlin

to research and support cures for Canavan disease and other degenerative brain diseases.

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The Canavan Research Foundation is dedicated to eradicating Canavan Disease and other genetic brain diseases. We spearheaded the world's first trial of gene therapy in the brain in 1996 and demonstrated the first ever regrowth of myelin in a deteriorating disease. We have been on "Sixty Minutes" and the "CBS Morning Show," have been featured in The New York Times and TIME Magazine, and have published research results in numerous scientific journals. We are searching for a cure, and we will not stop until we find one. All contributions go straight to research.

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Form 990 documents

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Assets and Revenues reported Dec. 1, 2014

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Organization Information

NTEE Code:
  • Diseases, Disorders & Medical Disciplines
  • Diseases of Specific Organs
  • Brain Disorders
Ruling Date:
March 1, 2001
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Subsection Code:
Affiliation Code:
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Deductibility Code:
Contributions are deductible.
Foundation Code:
Organization that normally receives no more than one third of its support from gross investment income and unrelated business income and at the same time more than one third of its), support from contributions, fees, and gross receipts related to exempt purposes. 509(a)(2)
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Exempt Organization Status Code:
Unconditional Exemption
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Filing Regulation Code:
990 - Required to file Form 990-N - Income less than $25,000 per year
Filing Regulation Code:
No 990-PF return
Asset Code:
$1 to $9,999
Income Code:
$1 to $9,999
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